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Foundation Friends of the Dutch FOP Foundation

Mission

Friends of FOP Foundation was founded in 2017 and originates in the Dutch Fibrodysplasia Ossificans Progressiva FOP patient association.The Dutch FOP Foundation was founded in 2004, with advocacy, education and peer support as its mission. In order to support research, and clinical drug trials in particular, a dedicated fundraising organization in the form of Friends of FOP Foundation was established.

Support Friends of FOP Foundation

Organization

The executive board provides day-to-day leadership to the foundation. Decisions are made in board meetings about fundraising and allocation of funds.

The foundation solicits recommendations from the Wetenschappelijke Advies Raad WAR (Scientific Advisory Council) on the allocation of collected funds.

WAR members as per 1 January 2018:

  1. Mr W.W. (Wiebe) Meijer, retired internist, Gemini Hospital Den Heldermeijer@planet.nl
  2. B.C.J. (Bram) van der Eerden, cell biologist. Calcium and Bone Metabolism Group, Erasmus MC Rotterdam.b.vandereerden@erasmusmc.nl
  3. Vacancy

Board Members

Ms drs E.C.M. (Elinor) Bouvy-Berends, Chairman Em.
Prof. Dr J.C. (Coen) Netelenbos, secretary
Mr P.T.N. (Peter) Philips, Treasurer

Wetenschappelijke Advies Raad WAR (Dutch Scientific Advisory Council)

The foundation solicits recommendations from the Wetenschappelijke Advies Raad WAR (Scientific Advisory Council) on the allocation of collected funds.

WAR members as per 1 January 2018:

  1. Mr W.W. (Wiebe) Meijer, retired internist, Gemini Hospital Den Heldermeijer@planet.nl
  2. B.C.J. (Bram) van der Eerden, cell biologist. Calcium and Bone Metabolism Group, Erasmus MC Rotterdam.b.vandereerden@erasmusmc.nl
  3. Vacancy
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